The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria, focusing in particular on the prevention and treatment of acute attacks, to provide information and support to families affected by porphyria, and to support and encourage medical research
Domain | porphyria-europe.org |
---|---|
Homepage URL | http://www.porphyria-europe.org |
Keywords | porphyria porphyrie porphyrin heme hemin hematin normosang pbg ala variegate coproporphyria protoporphyria aip acute attack red urine abdominal pain skin lesions epi hepatic |
Sprache | englisch |